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lupus is a funny word.

A new fun fact, I have lupus. It’s not something I talk about for the very reason of telling people I have an auto immune disease, they look at me like a fucking contagion, wont touch me, and ask if I got it from my life prisoner. It’s embarrassing. I have lesions, and I get my nifty butterfly rash. I wear long sleeves in the middle of summer to hide my lesions most days. I am 24 and I am constantly complaining about back and joint pain. I haven’t been back to work in oh 3 years because I wasn’t able to get up, without being in pain and having seizures. lemme tell you something, nothing test love like a good ol seizure. You wake up to find yourself naked in a tub, your husband giving you a sponge bath because you decided to pee all over yourself. thats classy. most doctors where we were living just gave me steroids & pain pills and does absolutely nothing. My blood pressure was damn near 144/120 and I was having chest pains that felt like heart attacks. and I will tell you my secret now. I smoke so much fucking pot. LOL. Omg I have wayyyy too much but before you get judgey lemme tell you that when I since I started to smoke, I have no seizures, my blood pressure is normal and I have very few flares now. I suggest we puff puff pass and remember I am now 1 year on NO MEDICATIONS FOR MY LUPUS.

SLE is a B.I.T.C.H

L.B